Palliative and end of life care
- CareSearch: https://www.caresearch.com.au/tabid/6129/Default.aspx
- FW Palliative Approach Framework Recommended Online Palliative and End of Life learning modules
- PEPA Online Modules and Workshops for GPs
- End of Life Essentials Education for Acute Hospitals: https://www.endoflifeessentials.com.au/
- Palliative Care Curriculum for Undergraduates PCC4U): http://www.pcc4u.org/
- Palliative Care Education and Training Collaborative: https://palliativecareeducation.com.au/
- Program of Experience in the Palliative Approach: https://pepaeducation.com/
- Queensland University of Technology & Australian Centre for Health Law Research, End of Life Law for Clinicians: https://end-of-life.qut.edu.au/
- HammondCare Palliative Care Bridge - Educational videos and Resources
- Department of Health Palliative Care topics
Identifying patients who may benefit from a palliative approach
- NSW Health Clinical Excellent Commission Amber Care Bundle: https://www.cec.health.nsw.gov.au/improve-quality/teamwork-culture-pcc/person-centred-care/end-of-life
- Supportive and Palliative Care Indicators Tool (SPICT): https://www.spict.org.uk/ and:
- SPICT
- Lynn 2005: The Surprise Question
Advance care planning
- Advance Care Planning Australia: https://www.advancecareplanning.org.au/
- Advance Care Planning Australia – Factsheet for Healthcare Professionals
- Advance Care Planning Australia – Factsheet for GPs
- Advance Care Planning Australia – Factsheet for GPs – ACP in general practice: Guidance on the use of Medicare Benefits Schedule Items
- NSW Planning Ahead: https://planningaheadtools.com.au/
- The Advance Care Project: https://www.theadvanceproject.com.au/tabid/5203/Default.aspx
- FW Palliative & End of Life Model Care Advance care plan and end of life wishes form
- Advance care directive – NSW Health Advance Care Directive
- Surrogate decision maker – NSW Guardianship Division Person Responsible factsheet
- NSW Capacity Toolkit
- Initiate resuscitation discussions – NSW Health PD2014_030
- Resuscitation Plan - Adult form (also on pages 22-23 of PD2014_030)
- Resuscitation Plan – Paediatric form (also on pages 24-25 of PD2014_030)
- NSW Ambulance Adult and Paediatric Palliative Care Plans
- Expected Home Death form
- Verification of Death and Medical Certificate of Cause of Death
Communication with palliative and end of life patients and their families
- Therapeutic Guidelines: Palliative Care: http://www.tg.org.au
- Far West LHD Palliative Care Symptom Management Pocket Guide
- Far West LHD Opioid Conversion Chart
- Victoria Eastern Metropolitan Palliative Care Consortium
Care in the last days of life
- NSW Health Clinical Excellence Commission Last Days of Life Toolkit: https://www.cec.health.nsw.gov.au/improve-quality/teamwork-culture-pcc/person-centred-care/end-of-life/last-days-of-life
- FWLHD Prescribing recommendations in the last days of life
- Example medication chart
- FWLHD LDoLT Syringe Driver Observation Chart
- WNSWLHD NIKI T34 Syringe Driver User Guide
- FWLHD NIKI T34 Syringe Driver Use at Home Leaflet
- Management of PAIN in the last days of life
- Management of BREATHLESSNESS in the last days of life
- Management of RESTLESSNESS and AGITATION in the last days of life
- Management of NAUSEA and VOMITING in the last days of life
- Management of RESPIRATORY TRACT SECRETIONS in the last days of life
- NSW Health - Community Pharmacy Palliative Care Initiative:
https://www.health.nsw.gov.au/palliativecare/Pages/community-pharmacy-palliative.aspx
Care after death
- NSW Health LDoL Toolkit Care After Death form
-
Verification of Death and Medical Certificate of Cause of Death
- NSW Health Verification of Death form
- NSW Coroners Cases and the Coroners Act 2009 (PD2010_054)
- NSW Health Coronial Checklist form
- NSW Health Report of a Death to the Coroner form
- NSW Government - Initial steps after a death is reported to the Coroner
- Cause of death quick reference guide
- NSW MCCD
- NSW Health Attending Practitioners’ Cremation Certificate
Palliative and end of life care in general practice
- CareSearch palliative care information for GPs: https://www.caresearch.com.au/tabid/6246/Default.aspx
-
Advance Care Planning Australia: Factsheet for GPs - Advance care planning in general practice: Guidance on the use of Medicare Benefits Schedule Items
-
Western NSW PHS: Factsheet for GPs – Medicare Billing in RACFs
- Medicare PBS for Palliative Care: https://www.pbs.gov.au/browse/palliative-care
Palliative and end of life care in residential aged care facilities
- PalliAGED (including palliAGED GP and palliAGED nurse mobile apps): https://www.palliaged.com.au/
- Residential Aged Care Palliative Approach Toolkit: https://www.caresearch.com.au/tabid/6294/Default.aspx
- RACGP The Silver Book: Medical care of older persons in residential aged care facilities – Palliative and end of life care
- Western NSW PHN: Factsheet for GPs – Medicare Billing in RACFs
- ELDAC: End of Life Direction for Aged Care (Website)
Palliative and end of life care for people with dementia
- Advance Care Planning Australia: Advance Care Planning Factsheet for Individuals with Dementia
- Advance Care Planning Australia: Advance Care Planning Factsheet for Individuals with Dementia and their Surrogate Decision Maker
Palliative and end of life care for people with end-stage renal failure
Palliative and end of life care for Aboriginal and Torres Strait Islander people
- Care Search: Palliative Care for Aboriginal and Torres Strait Islander people: https://www.caresearch.com.au/tabid/6249/Default.aspx
-
Australian Indigenous Health Info Net: Palliative and End of Life Care: https://healthinfonet.ecu.edu.au/learn/health-system/palliative-care/
- PEPA: Cultural Considerations - Providing end of life care for Aboriginal peoples and Torres Strait Islander peoples
- Australian Department of Health: My End of Life Care - Caring for your mob at the end of their life
Paediatric palliative and end of life care
- NSW Health Paediatric Palliative Care Programme: https://www.health.nsw.gov.au/palliativecare/Pages/services-for-children.aspx
- Caresearch - Paediatrics: https://www.caresearch.com.au/tabid/6573/Default.aspx
- Paediatric Palliative Care
Palliative and End of Life Care for Pharmacists
Specialist Palliative Care and End of Life Care
- Palliative Care Outcomes Collaborative: https://ahsri.uow.edu.au/pcoc/index.html
Self-care for healthcare professionals
- Care Search: Self care for clinicians working with palliative care patients: https://www.caresearch.com.au/tabid/6316/Default.aspx
Quality assurance and improvement
- Care Search: Audit in palliative care clinical practice: https://www.caresearch.com.au/tabid/6705/Default.aspx
Palliative Care National and State Organisations
- Australia and New Zealand Society of Palliative Medicine: http://www.anzspm.org.au/c/anzspm
- Palliative Care Australia: https://palliativecare.org.au/
- Palliative Care Nurses Australia: https://www.pcna.org.au/
- Palliative Care NSW: https://palliativecarensw.org.au/new/
National Palliative Care Projects
- Advance Care Planning Australia
Strengthening understanding and uptake of advanced care planning for the health and community sectors, and across the broader community.
https://www.advancecareplanning.org.au/ - The Palliative Care Education and Training Collaborative (PCC4U)
Strengthening the resources and standards for tertiary palliative care education providers.
http://www.pcc4u.org/ - The Palliative Care Education and Training Collaborative (PEPA)
Increasing palliative care knowledge for specialist non-palliative care health professionals.
https://pepaeducation.com/ - Enhancing Legal Knowledge of Medical Practitioners (Law of EOL)
Providing legal information regarding end-of-life law for doctors (medical specialists, GPs, interns and medical students)
https://end-of-life.qut.edu.au/ - The Advance Project
Building capacity of primary health professionals to initiate conservations about advance care planning and assess patients' and their carers' palliative and supportive care needs.
https://www.theadvanceproject.com.au/ - CareSearch including palliAGED
Increasing palliative care knowledge for patients, carers, families and health professionals.
https://www.caresearch.com.au/tabid/6129/Default.aspx - https://www.palliaged.com.au/
- End-of-life Essentials
Strengthening palliative care knowledge for hospital-based staff through evidence-based training and resources.
https://www.endoflifeessentials.com.au/ - Palliative Care Outcomes Collaboration (PCOC)
Improving standards of palliative care services through development and distribution of an evidence base.
https://ahsri.uow.edu.au/pcoc/index.html - Quality of Care Collaborative Australia 2
Improving the quality of paediatric care through education and support of health professionals involved in the care of children, and young people with palliative care needs.
https://research.qut.edu.au/ppcsrg/projects/quality-of-care-collaborative-australia-2/ - Caring Safely for Australians at Home
Providing resources for health care professionals to support carers to manage breakthrough symptoms at home.
https://www.caringathomeproject.com.au/ - Palliative Care Online Training Portal
Increasing knowledge of palliative care approach for care providers in aged care, primary care, the acute and community sectors.
https://www.pallcaretraining.com.au/ - Palliative Care Australia Project
Increasing quality of care and understanding of palliative care across the wider community through national leadership.
https://palliativecare.org.au/ - Helping family carers to support a relative or friend with advanced disease: the Australian carer toolkit for advanced disease.
Increasing knowledge of palliative care for carers of adults with advanced diseases.
https://www.carerhelp.com.au/ - Online Toolkit
Strengthening understanding of delivering palliative care for carers and practitioners who discuss dying and death with people with intellectual disabilities.
https://www.caresearch.com.au/caresearch/tabid/4778/Default.aspx
Far West Palliative & End of Life Model of Care & Framework (ePAF) Publications and Presentations
- Saurman E, Lyle D, Wenham S, Cumming M. A mapping study to guide a palliative approach to care. Rural and Remote Health 2019; 19: 4625: https://doi.org/10.22605/RRH4625
- Wenham S, Cumming M, Saurman E. Improving palliative and end-of-life care for rural and remote Australians. Public Health Res Pract. 2020;30(1):e3012001
- Rural and Remote Health - A mapping study to guide a palliative approach to care
- CareSearch Blog: Palliative Perspectives - SHARE - Shared Health and Advance Care Record for End of life choices: A guest blog post by Alison Stoker, Palliative Approach Project Officer, WNSW PHN
More information can be found on the Palliative and end of life model of care Web Resource Centre.